Priority #1

Okay, how about this. For the last 25 years I’ve had become relatively sedative. Trying to lay low, stay calm, not over exert myself because my body doesn’t respond well under extreme pressure. Heart rate goes up, blood pressure drops and I pass out. However I have lived with it so well that I basically was doing whatever I pleased within my set limits and I hadn’t had any episodes since 2004. So I thought I had it beat. Other than diabetes, I’m pretty healthy because I work hard to stay in control.

March 2012, i started having difficulty with the diabetes and I required an emergency surgery. I discovered I also have a hernia that they didn’t want to touch at the time. Recovery from the surgery was easy but guess what, the fainting spells came back with a vengeance. Now all of these symptoms I had over the years fall into one category, Marfan syndrome. The good news is since I’ve been dealing with the symptoms since I was a teen, I already have a great team of doctors in place. The only thing that has changed is I no longer have to say I have this, I have that, I can just say Marfan.

What I need now is a network of resources for diabetes, Marfan syndrome and the 50 years woman syndrome ;D. I can’t say that one out loud for fear of promoting some new symptoms. Lets deal with what I already got going on for now. Until next time ….. Keep wondering.

Leave a Reply

Fill in your details below or click an icon to log in:

WordPress.com Logo

You are commenting using your WordPress.com account. Log Out / Change )

Twitter picture

You are commenting using your Twitter account. Log Out / Change )

Facebook photo

You are commenting using your Facebook account. Log Out / Change )

Google+ photo

You are commenting using your Google+ account. Log Out / Change )

Connecting to %s